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EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa (EB) and Netflix has picked up his documentary on the subject.
Matter of Time follows Vedder as he hosts a fundraising concert in Seattle to draw attention to the childhood disease, which is a rare genetic skin condition, and aid in the discovery of a cure.
The documentary will premiere on the streamer on February 9.
Eddie Vedder and his wife Jill founded the EB Research Partnership (EBRP) in 2010, a nonprofit dedicated to funding research to treat and cure the life-threatening disease, one that afflicted the child of Jill’s childhood friend.
In October 2023, Vedder performed two sold out solo shows at Seattle’s Benaroya Hall with all proceeds going towards funding critical research. The doc will weave together this performance with personal stories from researchers, doctors, funders, parents and young people living with EB
Matter of Time is directed by Matt Finlin, who previously helmed The Movie, which Deadline’s Pete Hammond called a “Canadian Cinema Paradiso” and it is produced by Door Knocker Media, which Finlin founded with Karen Barzilay, in association with EB Research Partnership and the Vitalogy Foundation.
It premiered at the Tribeca Film Festival last year and has played festivals including the Nashville Film Festival, where it won Best Feature Music Documentary, and the San Diego International Film Festival, where it won Best Picture.
“This film captures all angles of the EB Community experience,” said Eddie Vedder. “From families and researchers, to volunteers and donors all coming together for an event that includes a big dose of music for good measure. Please join in and meet these incredible people. Their stories will remain with you.”
“This isn’t a concert film in the traditional sense. It’s a portrait of a community that isn’t crying out to be saved; they’re saving themselves,” said Finlin. “In a time when so many problems feel unsolvable, that kind of determination was deeply inspiring to capture as a filmmaker. What EB patients, families, researchers, and EB Research Partnership are doing isn’t just making progress for their own disease — it’s reshaping how we think about curing rare diseases worldwide.”
Jill Vedder, co-founder and chairwoman of EBRP, said, “It has been a profound honor to work in service of the EB community for more than a decade. Matter of Time is a film that shows the power of a community all focused on the same dream.”
Michael Hund, CEO of EB Research Partnership, added, “This film is more than a movie, it is a movement, showing the world how accelerating treatments and cures is possible when courageous patients and families, the brilliant medical and scientific community, inspired artists, and innovative business models come together. We are pioneering the path for how rare diseases like EB can be cured, scaling our model beyond EB, and inviting the world to join us.”
English (US) ·