Weeping Jesy Nelson shares a heartbreaking new video of her twin daughters which shows the early symptoms experts missed as she admits 'I could have saved their legs':

Jesy Nelson has shared a new video of her twin daughter's early symptoms of Spinal Muscular Atrophy (SMA1) as she admitted that she 'could have saved their legs.'

The former Little Mix singer made an appearance on This Morning on Wednesday after first sharing her eight-month-old twins Ocean Jade and Story Monroe's diagnosis on Sunday. 

The genetic neuromuscular disease SMA1 causes progressive muscle weakness and wasting due to motor neuron loss.

Jesy has explained that because the diagnosis was made at birth, Great Ormond Street doctors have advised that her girls 'are probably never going to be able to walk or regain their neck strength so they will be disabled'.

Speaking on This Morning an emotional Jesy said 'the part that frustrates me the most I knew and saw all of the signs before I knew what SMA was.'

Jesy and her partner Zion noticed symptoms such as their twins' bowed legs and unusual breating but were reassured by health visitors and GPs that as their babies were born premature they may be delayed in hitting certain milestones and not to compare their children to others. 

'I potentially could have saved their legs. I don't think I'll ever be able to get over or accept it. All I can do is try my best and make change.' 

'It was weird because from when I was in NICU [Neonatal Intensive Care Unit], the way they used to lay on my chest, they would have frog leg position.'

'I did say to my mum, "Isn't their belly an unusual shape? They breathe from their belly",' Jesy told This Morning's Ben Shephard and Cat Deeley. 

She showed a video of one of the girls' breathing as she admitted 'that's what frustrating - for me, if these were the cards I was always going to be dealt and there was nothing I could do about it, it would be easier for me to accept.'

'But when you know there is something that can be done about it and it is lifechanging to your child, that's the bit that I cannot accept.'

'When I took them home from NICU, the only thing I was really concerned about at that time was like checking their temperature, making sure they're still breathing. I'm not checking to see if their legs are still moving...'

Jesy explained that it was her mother Janice who first pointed out something was wrong, which the star admitted was 'alarming' when you have healthcare visitors coming round and saying they're absolutely fine, they look healthy.'

'It took for my mum to say "they don't move their legs the way they should be moving". 

'Bless my mum, she's a worrier, and I just thought my mum was being a worrier - but I noticed they were moving [their legs] less and less and less, until it just stops.' 

'That is why it's so important and vital to get treatment from birth and that it's detected from birth.' 

She added that it makes her 'so sad' to watch videos which show the twins gradually losing use of their legs over the course of their first month. 

'That's how quick it is and that is why it's so important to get treatment from birth,' she said. 

Later Jesy broke down and was comforted by Cat as she said she was 'struggling... but that is the part that like really gets me, is I just want to be their mum, I don't want to be a nurse.'

If SMA1 is treated pre-symptomatically (at or near birth), the disease can be largely prevented, and many children develop with minimal or no symptoms.

The singer has revealed that she has put a petition in to try and get newborn babies screened from birth for SMA and is 'determined and ready to fight' to see it approved.